Seven Years of the Cancer

Offstage announcer:

Previously On “Seven Years of the Cancer”

(Graphic: January 2007)

(Phone rings)

Voice on telephone:  “Lee we’ve got the results from your physical and we want you to come in and take the blood  test again. I’m setting up an appointment for you with a hematologist/oncologist”

Lee: “A what?”

(Cut to doctor’s office)

Doctor: “I’m the hematologist here and you have chronic lymphocytic leukemia.”

Lee: “I don’t know what that is, but you’ve made a mistake.”

Doctor: “It’s incurable, but it’s treatable, so come back in four months and we’ll do another blood test.”

Lee: “What does this mean?”

Doctor: “It means you come back in four months and we do another blood test.”

(Tight shot Lee, rolling eyes, shaking head)

(Graphic: April 2007)

(quick montage: Internet pages, conversations, Lee and Cheryl driving to cancer clinic, meeting new doctor)

(Golf course: Lee and three friends on a green)

“Look, maybe you have all the time in the world, but I have cancer. There are a few other things I’d like to do with the time I have left. Will you just putt for godsake.”

(Graphic: January 2008) (Infusion center: IV in the back of Lee’s hand, Lee and Cheryl holding hands)

(Graphic: September 2008) (Lee and Cheryl in exam room. Doctor walks in holding papers, smiling.)

“You done good..”

(Lee walking the dogs down the sidewalk)

(Graphic: February 2012)(Lee in the infusion center. Two nurses overheard talking to each other)

“He seems a bit depressed.”

(Graphic: September 2013) (Lee being led to an exam room, door closing behind him.)

Lie on my stomach and wait some more.  A lot of idle chatter about the weather and then she jams a sharpened metal drinking straw into my hipbone.  Poke in a needle and draw out some fluid, and then some kind of gizmo that reaches in and snips off some bone marrow. They tell me it’s supposed to be painful. And this time it fulfilled that promise.

(Graphic: October 2013)

After looking at the bone marrow biopsy, my doctor declared I’m fairly healthy for a guy with stage four cancer.

(Graphic: April 2014)(In exam room going over paperwork with the director of clinical studies.)

We had talked about it and had a pretty good idea of what we wanted to do. Is there any reason not to wait? Will it be any easier or more effective if I’m older and sick? If anything, it seems like the right time for it now.

(Graphic: May 2014) (Lee in hospital bed, IV in arm, taking a handful of pills.)

(Graphic: August 2014) (Exam room. Doctor sitting on stool, with papers in hand.)

“That’s really amaz.. really good.” Lee and Cheryl squeeze each other’s hands.

And now, the season finale of Seven Years of the Cancer

(Graphic: December 2014)

I finished the infusions in November and no matter what will continue to take my pills for another three months, maybe longer. So the next step in the process is to figure out how it’s working.

I’m at the hospital at 8:30 in the morning to drink a quart of iodine water so that whatever they’re looking for will show up on the CT scan. The scan doesn’t happen until 10:00 and it’s pretty uneventful. Cold room, thin warm blanket, get dressed and leave.

Breakfast wasn’t allowed before the scan and my next appointment is at 11:00 in another building so there’s no time to eat yet.

Bone marrow biopsy number I’ve-lost-count is next and again, like almost every time, they have trouble getting through my hip into the marrow. Something about strong bones. That’s good if I live long enough to fall like so many old people, because odds are I’ll do more harm to the sidewalk than my hip. But it’s not good if the objective is to get a hole in the bone and snip off some marrow.

She kept trying and it was pretty aerobic for her. Didn’t bother me though. Every couple minutes she would ask if I was having any pain until I finally said that answering her questions was the only thing keeping me awake.

Anyway I finally was able to eat and then Cheryl joined me for the doctor’s appointment and at least a partial verdict.

He had the results of the scan and except for one small lymph node under my arm, the rest were gone. Now, I wouldn’t know a lymph node if it were on the table next to me, but the fact that the scan can’t find any is a good thing. The one it did see is described as fatty tissue. Well, that’s embarrassing. But have you any idea how hard it is to get a lymph node to eat right and exercise?

So my doctor is pretty impressed with how it’s going and we won’t have another appointment for three more months. Even so, the biopsy results won’t be in for a couple weeks so all in all it’s a hung jury.

Then, in the morning of Christmas eve, I got an email. From my doctor.

“Regarding the bone marrow biopsy: the liquid aspirate showed only a tiny tiny amount of CLL: 0.01% of the cells were CLL cells. This is about as low as it gets before it’s no longer detectable. It’s possible that we will want to repeat the marrow biopsy in about 2 months to see if the 0.01% residual goes away.”

As we kind of suspected, there wasn’t enough marrow to test but the conclusions from the aspirate were conclusive enough for me. Considering I was in the mid-double figures six months ago, getting down to one one-hundredth of a percent is pretty good. And I’m still taking pills. Could root it out altogether. Have at least kicked the can down the road a good long ways.

When we opened the champagne on Christmas Eve I was toasting something in addition to friends and family.

Coming soon: Season Eight.

In Defense of Congress

It seems as though everywhere you turn some Beltway observer is complaining that the 113th Congress did not do anything. It’s true that up until their last day in session they had passed fewer bills than any in history. Then in a flurry of activity they voted on just enough legislation to surpass the 112th Congress, barely.

But those who consider this a “do-nothing” Congress, weren’t watching C-SPAN at the right time.

“We’re totally outraged by this legislative deal, which was done in the middle of the night.”

Congress Says It Has to Cut Pensions to Save Them
Bloomberg BusinessWeek

“[The bill was] released in the middle of the night,” Slaughter said at the beginning of the hearing.

Boehner Ally Admits Omnibus Bill Was Crafted in Literal Cigar Smoke-Filled Back Room
Breitbart.com

That’s why Democrats had to use a parliamentary maneuver in the middle of the night to pass it.

Obamacare & the Gruber Democrats
Real Clear Politics

Remember in 2009 when the Democrats controlled the House and Senate and passed Obamacare in the middle of the night without anyone reading the thousands of pages of the law and over the vehement objections of the American people.

Obama: President or King-Dictator?
al.com

The vote was moved up two weeks in the middle of the night …

Messy Fight for Veterans’ Affairs Ranking Member Slot
Rollcall.com

If they bring it up in the middle of the night and there are only Democrats there, it is ratified.

Gun Rights Activists Are Worried Obama Could Use Executive Action On United Nations Treaty Limiting Gun Rights  
Westernjournalism.com

“The fact that we have made it legal now…in the middle of the night, days before Christmas…”

Blanche Lincoln Segment on Mike Huckabee Show Full of Nonsense
USPoker.com

“These kinds of backroom deals and changing of the rules in the middle of the night is exactly why Congress has a lower approval rating than cockroaches and traffic jams,” he said.

Nancy Pelosi Says Decision to Delete Reporting Requirement for Free Trips ‘Must Be Reversed’
National Journal

Unlike the criticism Congress received following the passage of UIGEA (which was attached to the Safe Ports Act of 2006 literally in the middle of the night)…

House Judiciary Committee May Hold iGaming Hearing During Lame Duck
NJPokerOnline.net

Apparently Congress worked a lot, but waited until after dark to do it. It also seems the work they did at night was on legislation that no one liked and may have actually been harmful.

The solution seems simple. The halls of Congress should close at the same time as the Georgetown bars.

August in December

There was a retirement celebration last night at the television station where I used to hang out. Surrounded by friends, co-workers past and present, and a few dignitaries, J. W. August was lauded with deserved accolades, honors and, because it is television, the inevitable tribute video.

He accumulated an obscene number of awards and honors in his career, but his greatest accomplishment may have been working at the same television station for 32 years. I traveled through seven stations in that time span; leaving some because I wanted to and others because they insisted.

At one time or another he held a lot of jobs and job titles there, but his devotion and his heart is in investigative journalism. And more than once last night I heard him described as a journalistic pit bull who grabs on to a story and won’t let go.

It’s been said of him before and, while it’s true as far it goes, it strikes me as an odd compliment. After all, isn’t that in the definition of the job? Get a lead and follow it to the end, wherever it takes you. The thing is, he does it better than most.

But those who see him only as a pit bull don’t know the same guy I do. They have never been in the newsroom with him when a child walks in. Never seen him drop whatever he is doing, deadline be damned and plop down on the floor in front of the kid, pulling a box of toys and a bag of candy from his desk while magically producing quarters from thin air and giggling and smiling.

They’ve never gone to him with a problem, large or small, real or perceived and had him turn his full attention and energy to them, not to ask what he can do, but to tell you what he’s going to do.

A pit bull? The J. W. who is my friend is a puppy dog. Kind, caring, undyingly loyal and – if you stand next to him – likely to lick you on the cheek.

Obama Executive Order Has GOP Fuming

(Washington, DC) – Reaction to President Barack Obama’s latest executive order has been swift and angry. On Friday, the president issued an order declaring government offices will be closed on Friday December 26, 2014. Republicans are vowing to stop the order from taking effect.

“This sort of scorched earth approach to governing has got to be stopped,” House Speaker John Boehner told a hastily called news conference. “The American people expect their government to be working for them,” he said from the clubhouse foyer at Congressional Country Club in Bethesda before the House leadership adjourned to the golf course.

“It is the purview of the Congress to shut down the government,” Boehner added. “It cannot be done by executive order. As the president said himself, he is not an emperor.”

The Speaker brushed aside criticism that the House will be in session a total of only 17 days from October through December. “This is about a president who ignores his oath to uphold the Constitution. If we have to, we will file a lawsuit to stop him,” Boehner said angrily, his face turning from its usual bright orange to deep red.

Senator Ted Cruz (R-Texas), a presumed presidential contender, declared the president’s action a “fiscal disaster waiting to happen.” He claimed the one day closure will cost the government billions in lost productivity and demanded that funds be found to make up for the loss. “Before we go around closing offices, we need to cut programs to be sure the taxpayers aren’t left holding the bag,” Cruz told reporters. “And I think we start with Obamacare and immigration reform.”

“This is the sort of thing you would expect from a socialist Muslim,” former Alaska governor and vice presidential candidate Sarah Palin said on Fox News. “He’s trying to move the most important holiday on the Christian calendar, which is to say the only calendar there is in this Christian nation and around the world, super-specially at this time of year, so he can have another day to face Mecca. He needs to be reminded the White House is the people’s house, Sean. It has an East Room, but it doesn’t have a Mideast Room.” Palin was speaking on the Fox News hastily arranged special program “Escalating the War on Christmas.”

When asked for his view of the executive order and reaction to it, soon to be Majority Leader Senator Mitch McConnell (R-Kentucky) said, “It is not only illegal, it is immoral and repulsive. And frankly it is totally unnecessary. I’ve been in the Senate since 1985 and have never worked a single Friday.”

My Numbers Up

We’ve all heard it said; there are times when you can’t explain it, there’s nothing you can do about it, when your number is up, your number is up. You accept it, if you can, and you move on as best you can.

I went back to the clinic and they showed me the results of the new blood tests. It hit me like a punch in the gut. Literally. A hypodermic shot in the stomach that stimulated my bone marrow to produce white cells. My numbers are up. My white cell numbers, my neutrophil numbers. Way up.

The neutrophil count (the number of the cells with the white hats that fight infection) which had forced me to sit wrapped in a blanket, with my nose pressed against the window watching the world go by, shunning all humanity (not unlike the way I am most of the time, come to think of it) had gone from 0.2 on Monday to 10.0 on Friday and down to 6.4 by Monday. For those few odd folks among you who weigh yourselves more often than you get blood tests, know that the normal range for ANC is 1.6 to 7.0.

My white cell count had gone from 1.4 to 18.8 to 8.6. On the off chance you haven’t memorized it, the normal range of white count is 4.0 to 10.0. So there was a day or so in there where I was bulletproof. Presuming my aura could have been transmitted, I should have seized on the moment to hold a revival meeting and slap people on the head to heal them.

In the roller coaster ride that is chronic lymphocytic leukemia, that shot is an E ticket. If it didn’t cost something between a house payment and a house, I’d keep a six pack by the bedside.

It also makes your bones ache, presumably because it’s taking a whip to your bone marrow and making it work overtime. I got that shot last Monday and by Thursday my hips and back were aching like crazy. Luckily, it only bothered me if I sat, or stood or lay down.

But it worked.

Now then, the upshot of all this math is that I am once again eligible to take the drugs in my clinical trial. Drugs that were suspended last week when my numbers were down so much my number was up. I sat through my sixth and final infusion today and went home with a month’s supply of ABT-199.

Next month, I’m back again, just to be sure I can find the place, and to have a CT scan and a bone marrow biopsy. We might have the results of those in time to hang on the tree.

Down and Down

We’re on vacation this week and we’re supposed to be in Chicago. Abbvie, the company that sponsors the clinical trial I’m in, is holding a conference and invited us to come and discuss what it’s like to have CLL. It is flattering, though there are other people in the ABT-199 trial, my name just floated to the top because someone there read this blog a few months ago. And then they asked us to come anyway. Makes you wonder a little doesn’t it.

The appointment for my last Rituxan infusion of the trial was moved up two days so we could make the trip. Abbvie got the plane tickets, the hotel reservations and the car service. I haven’t been on an airplane (or in an airplane either) in four years and I hear there have been a lot of improvements. It’s actually pleasant now I guess. Lots of legroom, food, drinks, and you don’t need correct change. Right?

So I went in to the clinic for the infusion, did my blood tests and waited an hour or so for results. That’s when the nurse came in and said my counts aren’t good enough to have the infusion.

Seems my ANC is way low. I wasn’t aware the African National Congress had any connection with leukemia, but it turns out ANC is also absolute neutrophil count. Those are the good white cells; the ones that fight infection and disease. The low end of the normal range for that ANC is 1.4. Mine was 0.2. That’s almost bubble boy. My doctor said it will only go up from here. Since the alternative would be a negative number, you don’t really need a medical degree for that conclusion, but I’m glad he said it out loud. Anyway, I couldn’t get the infusion and even had to surrender my pills. We’ll try again in a week. I got a hypodermic in the stomach, a handful of masks, a long list of things I shouldn’t do and told to go home. If I happen to come up with a fever over 100, I’m supposed to go directly to the hospital. Do not pass go.

And we had to cancel the trip. It’s everything that’s on the list – crowds, restaurant food, airplanes, mold spores. The biggest worry was the flight. We had chosen Petri Dish Airlines. It’s the very definition of an air carrier, in every sense of the word.

The good news is, we won’t be in Chicago this week where the high temperature is supposed to be 35 degrees, and the warmest thing I own is a sweater. The bad news is, we were looking forward to getting away, even in a polar vortex and the whole idea of the conference was interesting, bordering on exciting.

The good news is, last weekend (before I knew I was a 220 pound delicate little flower) I was hauling sand and cement and making a flagstone path in the back yard and today that job is far too dangerous for me. The bad news is, the path is only a third finished and is not going to finish itself.

The good news is, if I can’t build the path and do the rest of the yard work, I can still play golf. Golf’s not on the list of immune threatening activities, provided I soak my balls in Purell, and who’s ever heard of anyone dying on a golf course? The bad news is, my Dad died on a golf course, actually.

The good news is, the trial has been working spectacularly and I’m very optimistic about what we will find (or not find) next month when I have a CT scan and bone marrow biopsy. The bad news is, all this bad news is not helping my mood, particularly since my optimism quotient is naturally lower than my ANC.

You might say it is the best of times, it is the worst of times. (That just might catch on).

Breakfast and Infusion

Photo of PillsBreakfast and a handful of pills. How does your day start? One of the rules of the clinical trial is that I take my pills within half an hour of breakfast. And I have to keep a journal of that.

It’s a funny little journal. They want to know what time I took the pills, and what time I finished breakfast, in that order. The last event first and the first event last. There’s also a column that asks if I ate all of my breakfast, and if not what percentage of it I did eat.

Now, sometimes breakfast is a muffin and a cup of coffee. Sometimes cereal and coffee. Occasionally an omelet and coffee. It doesn’t seem to matter to anyone how big the breakfast is, just how much of it I eat. No one explains why. No one seems to know. For those who are curious, I always eat it all. Because, you know, starving children in Africa…

This day my first stop is the clinic. Infusion day. I always call it a clinic because infusion center sounds so cancerous and La-z-Boy gallery so unprofessional. But it does rather resemble that. A room full of recliners, separated by curtains. But let’s back up. To get the full flavor of the experience we have to start in the lobby.

Someone decided it would be a good idea to get a bunch of modular chairs and couches arranged in U shapes so people could be comfortable while they wait to check in. From that you might get the idea that the check-in process can take a while. You would be right.

The furniture, however, is anything but comfortable. Like all the furniture in the entire building, it is vinyl. If you wondered what had become of Naugahyde, wonder no more. It’s all here. It’s boxy and upright with chrome legs. Mounted on top of the couches is a frosted Plexiglas plate to separate your U-shaped couches from the ones behind you. Who designs this stuff? It’s part conversation nook and part cubicle. And they’re kind of scattered around the lobby in front of the check-in desk.

Okay, so settle in and wait to check-in. Except for the sign that says “please form a line here and wait to be called.” They went to the trouble to buy insanely ugly furniture and then tell you to stand in line. So you can scatter around and sit, but then you don’t know when it’s your turn. Or you can stand. Let’s just say it wasn’t thought out very well. They ought to make us take a number, but then they’d have to admit the whole check-in process is broken.

Eventually I get my paperwork and go to the next lobby. And when my name is called in there I finally get into the clinic/infusion center/la-z-boy gallery. Usually it’s now somewhere between thirty minutes and an hour after the time of my appointment.

They take vital signs, look for a vein, start an i-v and call the pharmacy. It apparently comes as a big surprise to the pharmacy that anyone is there, as it takes another half hour for the drugs to finally arrive.

By now I’ve finished two or three days worth of Times crosswords and if I didn’t bring my laptop, I have to watch TV. It’s a ten inch screen attached to an arm on the wall. I pull it out and hope it works. It gets about fifteen or twenty channels, and often pushing the button to change channels will adjust the volume. To be consistent, adjusting the volume often changes channels. And like all TVs, there’s nothing to watch. Unlike all TVs made in this century, it has tubes.

I’m not complaining, even though I am. It’s better that they spend money on test tubes and Petri dishes and researchers than flat screen televisions and designer furniture. It’s just curious that it can be so cutting edge and so antiquated all at the same time. And the truth is, I love the place. I actually look forward to going there. It’s less than perfect but they’re doing some cool things in there.

Missing Word

There’s a word missing from the English language. Like penicillin and Velcro, it was discovered accidentally. Unlike those or Play-Doh or the Slinky, I discovered it. It is the verb for propelling a bicycle. Webster would have you believe that word is bicycle, bicycled, bicycling. But as a verb that is wholly inadequate. “I’m going to bicycle to the store” conjures up an image photo of penny-farthingof a man with a handlebar mustache, hair parted down the middle, sitting atop a penny-farthing. It makes as much sense as saying you will car to the store. You don’t car, why would you bicycle?

For the exercise, of course. And that’s why “ride” a bicycle is also inadequate. That connotes the bicycle is doing all the work, and I’m pretty sure—from the sweat on their faces and the muscles in their calves—that is not the case. To carry on the car analogy, going for a drive seems more active than going for a ride. But it’s not.

I suppose you could pedal, but its rather unfortunate homonym instantly comes to mind. Saying you are going to “pedal to the store” sounds as though you are going door to door selling brushes or encyclopedias, leaving your bicycle in the driveway.

Bike is a slightly more acceptable verb than bicycle, but only because it rhymes with hike.

So help me out here. What is the appropriate word? To ________ a bicycle. Don’t do it for me. Do it for English. Do it so that guy can shave his mustache and get off the funny bicycle with the big front wheel.
-0-
While you’re at it, please explain why pants come in pairs. I understand buying a pair of socks or a pair of shoes. After all there’s one for each foot. But why would you buy a pair of pants? And don’t say it’s because you can’t go outside in just your socks and shoes.

Yes, you have two legs and a pair of pants covers both legs. If you cut the legs off the pants, you’d essentially have underwear and it would also be called a pair but wouldn’t cover your legs. A shirt covers both arms and if you ask the clerk for a pair of shirts he’ll bring over two shirts. (You would use a pair of scissors to cut the legs of the pair of pants, but let’s not go there just yet).

Broadcast Writing

A friend commented on one of my posts recently that I seemed to have lost my ability to write in complete sentences. Fact is, I never could write in complete sentences. Microsoft Word points out the same thing. My page is filled with squiggly green underlines and the admonition “Fragment (consider revising).” I don’t consider it, and not only because the advice is a fragment in itself. It’s just the way I write.

After all I spent most of my adult life in and on television.

I owe my career in broadcast news to whoever invented the ellipsis. Proper punctuation has no place in television.

It’s a language of phrases… pauses and emphasis and nuance. You can write complete sentences, but they better be short. It’s being read out loud after all and it is best read aloud by the people who write it. It’s hard to write in another person’s voice; to construct a sentence the way they are comfortable reading it. Yet that’s what I tried to do for most of my career. I gave up reading my own writing very early on. It became apparent to me that I could write reading a lot better than I could read writing. (And that says more about my reading than it does my writing). Even at that, I wrote for very few people who could read my writing. For everyone else…I wrote their reading.

For instance. Shortly after I went to work in Greenville South Carolina I wrote this little story:

DAVID JANSSEN .. WHO RAN ACROSS OUR TELEVISION SCREENS FOR FOUR YEARS AS “THE FUGITIVE”.. DIED TODAY.

HEART ATTACK.

48.

The anchor couldn’t read it.

He went on the air with “Actor David Janssen, who played “The Fugitive” for four years, has died of a heart attack. David Janssen was 48 years old.”

He ruined my story. But in those two sentences I learned I couldn’t write for him the way I wanted to. I had to write the way he wanted to read. That’s the job.

I think my story had emphasis and even a little drama. “Heart attack” “48” were meant to stand alone, to make people say, god he died young.

The rewrite had no soul. It was wire copy. I was expecting him to end it with “he’ll be missed.” But if he had, I would have walked out then and there and never come back. As it was, I worked in Greenville a total of 89 days before I got a job in San Diego.

There, I would drop by the station on weekends just so I could write for Mitch Duncan. He could read my writing. Because it’s how he wrote too. He paused when he was supposed to; not when he was out of breath from reading some ridiculously long sentence full of prepositional phrases. The copy was a mess. Filled with enough dots and dashes to be Morse code. But he could read the hell out of it.

Pick up any textbook on broadcast writing and if the first paragraph of the first chapter doesn’t say it should be conversational, burn the book.

Think about it. When you first told someone Robin Williams had died you probably said “hey, did you hear? Comedian and Oscar-winning actor Robin Williams has died at the age of 63, according to a spokesperson for the actor. The Marin County Medical Examiner’s office reports it is suspected to be a suicide.”

Didn’t you?

If you did, you could anchor the news in Greenville South Carolina.

I learned most of what I know about broadcast writing by listening to other people write. You can’t figure out broadcast writing by reading it. (Or reading about it for that matter, so if that’s why you’re here you can stop now). It’s meant to be heard. I listened to one person in particular.

David Brinkley.

If you didn’t see David Brinkley, or if you only know him as the gray haired old man slumped in a chair on a Sunday morning talk show, you missed a great opportunity. The news anchor with the staccato style and razor-sharp wit. He single-handedly changed broadcast news. And my god could he write.

Brinkley anchored the NBC Nightly News, first with Chet Huntley and then with John Chancellor, and unlike a lot of news anchors, he wrote every word he read. He wrote without flourish but not without flair. With purpose, but without verbs.

Take for instance the night in 1977 when he did a little story about James Earl Ray’s arraignment for escaping from prison. As best I remember (it was 1977 after all) Brinkley wrote it this way:

JAMES EARL RAY… WHO KILLED MARTIN LUTHER KING, JR… ESCAPED FROM THE BRUSHY MOUNTAIN STATE PRISON IN TENNESSEE. FOUND THREE DAYS LATER… MUDDIED, BLOODIED AND LYING UNDER A PILE OF LEAVES.

WENT TO COURT AND SAID HE DIDN’T DO IT.

EVEN THOUGH HE DID.

It has stayed with me all this time because he had the gravitas to tell the truth. Too many broadcasts would have reported “James Earl Ray, the assassin of Martin Luther King has been charged with escape and today pleaded not guilty to the charge. Ray is accused of escaping from prison in Tennessee and was captured three days later after an extensive manhunt.”

It is boring, sterile, confusing and ridiculous.

That last line….”even though he did”…took some guts. But I’m sure Brinkley didn’t see it that way. It was just the right thing to do.

Or consider this one —

P.K. WRIGLEY … THE CHEWING GUM MAGNATE… WHO STOOD BY THE CHICAGO CUBS THROUGH THIN AND THIN… DIED TODAY.

Also Brinkley. (Also 1977).

Irreverent? Maybe. Memorable? Definitely.

I wrote and produced television news for more than thirty years and can honestly only remember bits and pieces of three or four stories I wrote. After all, as soon as it’s off your fingertips, you’re on to something else. You don’t languish over it… you knock it out and move on. There’s a pile of other work that still need to be done and the clock is ticking. Plus, as we were fond of saying, as soon as the anchor has read it on the air it’s “on its way to Mars.” (I did most of my work before You Tube. Can you tell?)

My first story as a reporter in Waterloo Iowa was about a developer who wanted to turn an abandoned stone quarry into a residential tract. There were a lot of people still in the newsroom when it aired and I felt as though they were watching to see what the new guy’s story was like.

Or maybe I’m just self-conscious.

OK, I’m definitely self-conscious. Leave me alone, all right?

Stop staring.

I mean it, stop.

Anyway, the opening line was – A LOT OF PEOPLE LOOK OUT AT THE OLD (insert forgotten name here) STONE QUARRY AND SEE …. A STONE QUARRY. (insert forgotten name here) OWNS THE PLACE. HE SEES CONDOS.. SHOPS AND PARKS.

(For the uninitiated, I’m not shouting. Broadcast copy is written in all caps. Except by Brinkley who wrote in upper and lower case. Or so I’m told.)

Some time later, still in Waterloo, I was producing the news and wrote a sentence I like.

First, some background. There are several bridges across the Cedar River in Waterloo and one of them needed some repair. The Army Corps of Engineers was doing the work, and said the bridge would be closed for six weeks. It took longer…of course…and…of course…was a major inconvenience. When they let us know they were going to cut a ribbon and let the Mayor drive across the bridge one evening and then open it the next morning to traffic, it was welcome news.

So we shot the ribbon cutting and I wrote the story, that ended with … AND THE ARMY CORPS OF ENGINEERS PROMISES .. THE FOURTH STREET BRIDGE.. CLOSED FOR SIX WEEKS…. FOUR MONTHS AGO.. WILL BE OPEN IN THE MORNING.

It was all true. And it made several points, all at once. There’s a little bit of Brinkley in there.

Then there’s the David Janssen story. That didn’t go so well.

In San Diego in 2001 there was a shooting at a school. Our coverage won the National Headliner Award for Spot News coverage and an hour special that we turned around in short order won the Headliner for Public Service Program. It was pompously called “Preventing the Pain: Real Solutions for Stopping Youth Violence.” It could have won honorable mention for worst broadcast title, but that wasn’t a category. Colons have no place in broadcast writing. Ever. But then, I don’t write titles.

We didn’t succeed in stopping youth violence, maybe you noticed, but I had a line in the anchor copy somewhere that said

THERE IS SOMETHING ABOUT THE WAY KIDS GROW UP IN THIS COUNTRY.. THAT MAKES THEM WANT TO HIT.. AND HURT.. AND HATE

I know, by itself it’s a pretty much indefensible statement. But it was in amongst a bunch of other phrases about studies and sociology. Those don’t matter now. It’s about the alliteration.

So there it is. A career of daily news writing summed up in four sentences. For the rest, you’ll have to go to Mars.

Halfway

I’m at the clinic today, waiting to find out how I feel.

Waiting is the operative word today. Everything is taking longer than it should. I got here at 7:00 so I could be first in line for lab work. The sooner they take the labs the sooner they get the results. The sooner they get the results the sooner they can start the infusion. And the sooner they start the sooner they finish and the sooner I can go home.

In theory.

Today it was 10:20 before they came with the Rituxan. That’s my infusion drug. This is round three of six. Once a month until the middle of November. And there’s also the daily dosage of ABT-199 pills. It’s an experimental Bcl-2 inhibitor. (If you’re here for the first time, I have CLL and am in a clinical trial to try not to have CLL).

So anyway, the lab results look good.

Warning: here’s the part where I go through more numbers than a bookie and a lot of very highly technical scientific data and if you think it’s been boring so far, just wait.

First, a lot of the counts are below normal – white, red, blue, hemoglobin, platelets, alcohol – and not even caffeine is above normal. So that’s good. Probably better if everything is in the normal range, but mostly, low is better than high. My white count was way high and pretty much all leukemia cells when I started the trial and now it’s below normal and mostly, good white cells.

And then there was my exam. I was hooked up to my IV pole so the doctor came to me. And he had the results of yesterday’s CT scan. He went through them one by one. Spleen, normal (it was enlarged before the trial). Liver, same as spleen. I mean it’s normal now, was enlarged before. I know your liver’s not the same as your spleen. One of them does something and the other does something else. Sorry to have to get all anatomical on you, but it’s important to have an understanding of these things. Got that?

Foghorn Leghorn
I say, I say, it’s gone now. Pay attention boy.

The report doesn’t say they’re normal. It says they’re “unremarkable.” I was offended.

And then lymph nodes. It’s blood cancer, but if your lymph nodes are enlarged, those are tumors. Lymph nodes and the spleen (see above) are where leukemia cells are parked. So I’ve got one node that’s 6 millimeters by 4 millimeters, but before the trial was 11 x 10. Another one was 14 x 6 before and it’s gone now. It’s gone now.

He read those off and then said “that’s really amaz.. really good.” In the game of numbers, if your lymph nodes are below five millimeters and your platelets are above 100, you’ve had what they call a complete response to the medication. So that one lymph node is right on the cusp and my platelet count is 104. And I had only had two of the six infusions at the time of  the CT scan.

So far in this trial, 84% of the patients who have completed the infusions have had positive results and 36% have had a complete response. Still really small numbers of patients. But looks like I’m on the way to a complete response. I’ll do a couple more infusions, in September and October and then another CT scan. If the results hold up, then after the sixth and final infusion I do a bone marrow biopsy. That lets them literally count the number of leukemia cells. If it’s a complete response, maybe I stop the pills, maybe I keep taking them. We’ll figure that out if the time comes.

So, yay.

I started the trial in late May and it’s routine now. A handful of pills every morning. And a diary to keep track of what time I take them.

No side effects. Just effects.

If you’re wondering, I feel pretty good. Pretty damn good.